Indeterminate
May, 1999 Indeterminate - Indeterminate what?
Indeterminate life? Indeterminate hope? Indeterminate joy?
Now I see your face blurry with disease. I hate
it, disease and your face, I hate you. You may be guilty. I am definitely
guilty. Determinably guilty. But I do not hate me. I love me (but maybe less
than yesterday). I feel sorry. I feel violated. I feel afraid, I feel angry.
Violent. My fist feels powerful
more than yesterday. Like it could rise
up and fall down heavy, shatter your wide cheekbone split your thin skin
nullify your sweet smile, feels powerful like it could push all this aside,
away. Come crashing down, slam down on a long wood table and be a decision
made: NO. Determinably NO. I will not accept it, will not allow it, my blood is
clean, and my body will go on.
But I did accept it, allowed everything, knowing
the risk, the danger. I allowed what I did not want, what I hated, what hurt me
tore me in two, what has been working to tear up my life, my body, since
twelve, since rape. And what if it just keeps tearing me, what if Im
positive? Will I end up a thousand pieces, none of them good for anything? And
was the whole before you got hold of it good for something? Good for anything
though it allowed everything? Even if it was good to say No? No good to fight,
or to flee? Good. Now that weve asked all the questions, lets get
to the answers. Determine.
June, 1999 I see my own blood and
recoil
touch my wrist and want to open it to let go of the knowledge,
want to be indeterminate again. Please - but indeterminate meant positive,
always meant positive, and how could it have meant positive when your body
slipped through me like heroin and when I tried to yell, to hit, I turned to
hot stone, to something armless, voiceless, only a body opened wide by old
wounds, and newly wounded by your weight?
Wednesday, June 9 A memory - You should have
seen it, scary - I went mad. Wanted to kill someone, kill myself, kill every
man I saw. I had scary visions - like monsters, but formless, invisible.
Hallucinations, night sweat, nightmares
day-mares! I couldnt take
my hands away from my face, my eyes and ears. I couldnt cover my eyes
enough, make it dark enough, and shut out the light. The light scared me; trees
scared me, because the feverish scary visions were inside, not out there. I
screamed and could not stop screaming for a long time. I was so terrified and
ashamed, I could not look at my sisters, and if I did I would scream more,
could not stop screaming for a long time. I was so terrified and ashamed, I
could not look at my sisters, and if I did I would scream more, not stop, cover
my eyes. I went back through all the pain and fear, back through my life and
all the trauma, back through all that Ive been hiding from, and each one
of those memories came through me like a storm and tore me up, but worse than
they had the first time. All at once. So I couldnt stop screaming. One
fear, one anger, one wound would fade and another loom over me, one by one like
dreams but not dreams.
Then I was angry. And disgusted. Even now I have
that same feeling sometimes, a rabid hatred, I fell my muscles tense, feel
enormous and dangerous, like I could let my heavy steel fist fall, shatter the
brittle cheek bones beneath the skin
and then the blood, I see the blood
and it frightens me. My blood, too, I feel it beneath my own thin skin - the
skin that was not able to protect me from myself - and I want again to let it
all out of my wrists. I try to get away from my pulse, try to be sleeping, by
working, by forgetting, but the image is with me always, the reminder is
present in that little warm place at the base of my hand, where persecuted
blood flows on.
July, 1999 To a friend - Now you have to
remember that when you tell me your story my story billows up and out around
you like blood in the ocean. Only no sharks appear to take away the body, it
remains here with me a stale reminder, a friend or foe. Now as I listen to your
story I have to learn again from the start to be calm, to put back together the
pieces, to heal, to make friends with the memory and with my body, my blood, to
love myself as I never have, and finally to listen, really listen to you,
because that is my life, and I do not intend to die.
If I could catch a rainbow
If I could catch a rainbow
I would do it
just for you.
And share with you its beauty Of the days
youre feeling blue.
If I could build a mountain You could call
your very own.
A place to find serenity A place to be alone.
If I could take your troubles I would toss
them in the sea
But all these things Im Finding are
impossible for me,
I cannot build a mountain Or catch a rainbow
fair
But let me be what I know best A friend
thats always there.
The Shame of It All
It was a beautiful warm Friday evening for
Kayaking. Despite my fears (and my big butt), I got in a kayak with Tina and
set out from Portage Bay into the pinkies of the setting sun. There we were, a
bunch of BABES bobbing in boats, proud that not even one of us had chickened
out. What can I say? It was total bliss, man. From Kayaking we went to eat
burritos, and generally cause a ruckus back near the office. The mood was light
and fun, and in my exuberance, I made a promise. A promise, alas, which I did
not keep.
So, I am writing today to confess all. Yes, it was
I, Victoria Virginia Chipps (yes, my real name) who swore to a dozen witnesses
that I would prepare the Puerto Rican dish Arroz con Gandules for our next
Thursday support group. Not only did I promise, but I got everyone really
excited about the unique, soothing, comfort food flavors of this wonderful
food... and then... I forgot. Imagine my embarrassment! Imagine the shame! More
importantly, imagine those BABES lined up on that Thursday, ready to chow down
that fabulous concoction of salt pork and rice and chicken and... well, I
digress. In the 12 Steps they emphasize making amends to those you have harmed.
So, here goes: Let it be known that on Thursday, October 14 (hey, I need some
time to emotionally prepare myself... and, er, find the recipe) I will prepare
Arroz con Gandules for support group lunch. Lets all hope that the meal
lives up to the build-up!
XOX, Your contrite chef, Jesse
PS: If any of you out there would like make a dish
for group one week, give Deb or Laura a call and let em know!
Get a Job
Sha na na na, Sha na na na na) 6 WEDNESDAY,
SEPTEMBER 15, 12:30PM 6 LIGHT LUNCH AT 12:30, THEN WELL GET DOWN TO WORK
AT 1PM 6 ARRIVE WITH WHATS IN YOUR HEAD; LEAVE WITH A COMPLETED RESUME
It happens to all of us. You see a job
announcement in the BABES newsletter, or on a bulletin board somewhere and
think, I could do that. But, when you sit down to write a resume or
fill out the application, you feel stuck. Maybe you dont even get to the
sitting-down-to-do-it stage, because youre afraid you wont have
anything to write down? You think about the usual application questions
about work history and formal education -- and in no time, your self-esteem has
sunk to new lows.
IT DOESNT HAVE TO BE THAT WAY!!!!! There are
three keys in writing resumes: Realizing that you are a valuable person with
important, special skills to share, naming those skills and qualities, and
knowing how to write them down in a way that emphasizes your best qualities.
At this event, we will work together to list your
strengths and skills well make an honest and exciting assessment
of why YOU are the candidate that employers should be begging for and
then well work with you to put those skills into a resume using Microsoft
Publisher. When you leave, youll have a beautiful and exciting resume
that emphasizes your best qualities.
So, come on down! If you have a specific job in
mind, bring a job announcement or application, so we can focus your resume
towards what that employer is looking for. See you there!
The BABES Network is happy to announce a new job
opening:
Womens Peer Treatment Advocate Hours: 10
to 30 per week (Depends on whether 1 or more people are hired) Pay: $11.06
to $12.80 (Depends on experience and skills) Area: Washington State (Need
not live in King County to apply) Closes: September 30, 1999 (Thursday)
Description: Working with BABES and Seattle
Treatment Education Project (STEP), the Peer Treatment Advocate will provide
treatment information to positive women through group presentations, one-on-one
sessions, phone calls, and newsletter articles.
What we are looking for: Are you an energetic
person who is interested in learning more about HIV treatment, and sharing what
you know with others? Are you the kind of person who always has new questions
for your provider? Can you use your personal experience without being limited
by it? Can you present ideas, research and treatment information fairly and
evenly? Do you like to take the technical goblety-goop that comes from articles
and researchers and break it down into plain English so that we can all get it?
Are you someone who is willing to say, I dont know? Do you
want to help HIV+ women empower themselves through information? If so, you may
be the person we are looking for!
Specific Duties Include: · Researching and
writing the BABES Perspective treatment articles. · Preparing and making
presentations on current treatment issues to positive women and families across
the state. · Talking to women and families individually about treatment
information, treatment adherence and self- advocacy. · Facilitating
telephone conference calls on HIV treatment issues. · Keeping up-to-date
on HIV treatment information. · Helping women to find the information
they need.
Skills that would be helpful in this job: Do you
have some of these skills? Dont be intimidated if you dont have
them all! - Experience of HIV treatment and treatment adherence issues as a
consumer. - Can write well, taking complex information and making it
understandable. - Can make presentations to small or large groups of people; is
comfortable speaking in public. - Experience with a diverse range of women and
families, and making connections with each. - Understands confidentiality
issues and maintains confidentiality. - Willing to travel. - Can effectively
work independently. - Can present information accurately and without bias. - Is
reliable and dependable. - Is a licensed driver with a good driving record and
a reliable, insured car. - Has a good basic knowledge of HIV disease. - If you
have the ability to write and/or do presentations in Spanish, its a plus.
To Apply: Send a resume and the names and phone
numbers of three references* to: The BABES Network 1001 Broadway, Suite
100 Seattle, WA 98122
*Dont have a resume? Attend the Get a
Job class at BABES on September 15
Thanks...
BABES would like to extend heartfelt thanks to The
Sisters of Perpetual Indulgence for including us in the 1999 Cake Walk!
The spectacular event occurred on Sunday, July
25th at the Oddfellows Hall and it celebrated the 3rd anniversary of the Abbey
of St. Joan. The 99-2000 recipients of the Sisters Charity Fund
were announced and the grants to the 98-99 recipients were awarded. Lots of fun
(and cake) were had by all at the Saintly cake decorating contest, cake raffle
and of course, the Cake Walk.
The Sisters Charity Fund helps support AIDS and
human right organizations. This fund is designed to help smaller organizations
that are having to fight for funding in the shadows of larger organizations.
The Sisters Charity Fund Selects local charities for a one year period. These 4
charities receive a grant from the Charity fund at the end of the year in which
they were selected at the Anniversary celebration of the ABBEY in July of each
year.
Babes sincerely appreciates becoming a beneficiary
of the Charity Fund!
For more information about the Sisters, see their
web site at www.theabbey.org, or call the nun line @ 206-860-3666.
Friends for Life Society and Country Doctor
Community Health Centers presents:
Stretch and Relax
This class will be held Tuesdays, September 21 -
November 16, 6:00 p.m. - 7:30 p.m. at Miller Community Center, 330 19th Ave E.
Call Nancy at 206-461-8332, fax 206-374-6330 or e-mail
programs@friends-for-life.org for questions. This class is available to all
with life-challenging illnesses, as well as to family, friends and caregivers.
There is no charge. Pre-registration is not required.
Great for enhancing whatever level of health you
have! This class is designed for people who want to use stretching, breathing
and other techniques to relieve stress, boost energy and improve their sense of
well being. Stretch & Relax uses low impact movements to get into gentle
postures. This allows for focused relaxation and breathing to bring calm to the
mind & body. One hour of the class will be spent on relaxation and
stretching to music. One half-hour will be available at the end of the class
for socializing with each other and various healthcare professionals.
Wellness Through Chair-Robics
This class will be held Fridays, September 24 -
November 19, 10:30 a.m. - 12:00 p.m., also at Miller Community Center (same
information as above). This class is designed for people who want to exercise
but may find starting an exercise program challenging.
This musical class will be focused for people with
low to moderate physical ability. Chair-robics is an exciting twist to
exercise, using sitting in chairs to begin exercising and building
strength.
This class will begin with stretching and warm
up, followed by chair-robics. The class will focus on breathing, relaxing, and
cooling down. Both classes will be taught by Terra Bernstein, a Skinner
Releasing instructor and yoga teacher. She has taught adults and children for
the past 10 years in both Seattle and New York and is interested in using
movement to tap into personal insights and histories.
Fibromyalgia
Fibromyalgia is an illness that is frustrating to
both patients and physicians as it is very difficult to treat. Aches and pains
all over as well as trouble sleeping are a routine part of life for those with
fibromyalgia. It is a disorder of brain chemicals characterized by chronic
muscle pain, stiffness, fatigue, and lack of estorative sleep. Many symptoms
can be associated with it, including irritable bowel, urinary urgency, and
headaches. It is also referred to as the fibromyalgia syndrome (FMS), because
it is in fact a collection of symptoms without a known cause.
Fibromyalgia is one of the most common rheumatic
conditions in medicine, affecting about 2 to 4 percent of the general
population. Women in the 20-50 age group are the most likely to experience
symptoms, which include fatigue along with aches and pains (in tender points,
near a muscles attachment to bone) scattered throughout the body. Both
soft tissues and muscles can ache. Fibromyalgia is not progressive, it is not
life-threatening, but it is as yet incurable. However, with proper care, it can
be managed, although about one-third of the people with fibromyalgia are
partially or totally disabled.
Conventional treatment for fibromyalgia consists
of low doses of a tricyclic antidepressant or serotonin reuptake inhibitors,
which serve to increase the availability of serotonin; the institution of
habits that improve sleep; proper nutrition; and daily aerobic exercise. The
need for exercise is a significant issue for most people with fibromyalgia;
muscle pain may increase after exercise, and repetitive motions of any sort
make most fibromyalgics hurt more. But most experts agree that exercise is the
single most important factor in a fibromyalgics well-being. It need not
be strenuous: Riding a stationary bicycle and walking are the two most often
recommended forms of exercise. People with fibromyalgia may have to start with
two or three minutes of exercise and work up from there a minute at a time, but
without exercise FMS can indeed seem to be a progressive disorder, as unused
muscles stiffen and atrophy, causing more pain and muscle damage. However,
there are also some nutritional therapies that can be beneficial.
Dietary suggestions:
Maintain moderate eating habits with a good
balance of protein, fat, and cabohydrate. Most of your carbohydrates should
come from complex sources such as whole grains, soy, and other legumes. Include
a few servings of a variety of fruits and vegetables each day. Eat fish at
least once or twice a week. Reduce your intake of fried foods, fast foods,
margarine, and baked goods.
Supplement suggestions:
Many patients improve when they start a supplement
program that includes:
- Fish oil supplements taken with breakfast
totaling 2-4 g of the omega-3 fatty acids EPA and DHA. Vegetarians can
substitute a teaspoon or two of flaxseed oil each morning. Omega-3 oils help
reduce inflammation.
- A basic multivitamin supplement added along
with additional antioxidants such as 100 to 500 mg of vitamin C and 200 to 100
IU of vitamin E.
- A B-complex vitamin that has two to five times
the RDA for the B-vitamins, although some patients may benefit from higher
dosages.
- Methyl donors such as dimethylglycine or
trimethylglycine can sometimes help. The dose would be 50 to 100 mg in the
morning.
- · For those whose symptoms are
associated with depression, the herb St. Johns wort taken in 300-mg doses
each morning could be helpful.
- Since difficulty sleeping is also associated
with fibromyalgia, establishing a routine is important. Going to bed and waking
up at the same time every day is a good idea. Some patients may have lower
levels of melatonin secretion at night. Melatonin two or three nights a week in
a dosage of 0.3 to 1 mg an hour before bed can help. Alternatively, 5-HTP
(5-hydroxytryptophan) at a dosage of 25-50 mg two or three times a week on an
empty stomach an hour before bed is also helpful.
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