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"Half the misery in the world comes of want of
courage to speak and to hear the truth plainly, and in a spirit of
love."
"Healing Moves'' Workshop
Seattle Friends for Life Society presents Part III
of their Healing Workshop Series. This free class will focus on movement
therapies that can relieve pain, increase flexibility, and improve strength,
balance and vitality.
Instruction includes Tai Chi/Qi Gong with Kim Ivy
of Embrace the Moon Ta'a Chi Chu'an and Ch'l Kung. Feldenkrais Awareness
Through Movement with Janelle Keane, Yoga with Laura Yon-Brooks, MA and
Aston-Patterning with John Heutmaker, L.M.P. All practitioners are certified
and place an emphasis on individuals with life-challenging illnesses.
This free workshop will be held at the Garfield
Community center, 2323 East Cherry Street, May 18th, 10:00 AM---3:00 PM.
The Seattle Friends for Life Society enhances the
lives of people with life-challenging illnesses and to their families, friends,
and caregivers b empowering them to make educated choices about their
well-being through education, and emotional, spiritual, and physical services.
All Society services are free of charge.
Hear Me Now
When I initially came to BABES, I had been HIV
positive for about five years. Prior to that, my husband and I had been pretty
much isolated..
My husband Gary developed full-blown AIDS when our
oldest son was two-years old and our youngest son was nine-months old. As my
husband became sicker and sicker, I felt so alone. The doctor was having a
difficult time diagnosing Gary's problem. Finally, he discovered that Gary had
CMV in his esophagus. At the time of the diagnosis, Gary had lost so much
weight that he could barely walk. Although the doctor suggested that Gary enter
the hospital, he refused. So, we arranged to have all his medical necessities
administered at home. Before I knew it, our house had become a mini-hospital
with IV poles, pumps, needles, medical supplies, and everything else usually
associated with a hospital.
Before I continue, I just want to say one thing.
Gary and I lived in a trailer park, and no one knew our medical status, nor did
I want anyone to know. Because I feared all the questions from our neighbors, I
kept to myself. Just like they say, this illness is very isolating. During that
time, I spoke to no one except to the nurses who came, the drivers who brought
the medical supplies, and Gary, who was so miserable he really wasn't much for
talking.
Because our children were so young, they didn't
understand what was happening to "Daddy." "Why is Daddy so sick? Why does he
have tubes in his chest? Why can't Daddy hold us any more?'' All these concerns
were hard for my boys to comprehend; I felt myself dying inside, yet I had to
be strong for them as I watched Gary slowly die.
At that point, none of our efforts seemed to help.
Seeing my husband go from being an independent, strong, vibrant person to
becoming a shell of a human being who could no longer even pick up his children
for a hug was a painful transition. However, he had something insideof him that
kept him fighting for his life. Looking at his small children, he would
struggle with every last breath to stay alive for his sons. He wanted to see
them grow up, take their first steps, ride their bikes for the first time,
laugh and play, and to hear them say, "I love you, Daddy."
On Gary's next check-up, his doctor told us that
he didn't know what else he could do for him, and that we should prepare
ourselves for his death. Although he added that if Gary could manage to stay
alive, several new medications were coming out on the market that possibly
could prolong his life. The doctor also suggested that he move to Bailey
Boushay House, but Gary wouldn't hear of it. So, we continued living day to day
without thinking about the tomorrows. Sometimes, especially at night, I would
quietly walk over, bend down, and listen to make sure he was still breathing. I
was so terrified that I would find him dead. There was no one with whom I could
share this without fear of rejection, so I kept silent.
I cannot even begin to tell you all of the
infections and opportunistic infections that Gary has had, but this has been
one hell of a ride. However, I will tell you that I wish I had known of BABES
because in the beginning, I could have used all the support that I could
possibly get; I was so alone. Traveling down the road is a lot easier when we
have people around us who listen when we feel that we just can't go on, or when
we think that we can't take any more of this disease, especially when we are
afraid to tell our neighbors, brothers, sisters, mothers, or fathers. I feel so
angry that this is the type of disease that if I have gotten it, I must have
done something terrible to get it, or I am a terrible person for having gotten
it. I want to stand up to those people and show them that I hurt just like they
do and to ask them please not to shun me or my children for something over
which we have no control. So, hear me now; I am a human being. I feel, I love,
I hurt just like they do.
Chicken Soup Brigade Rides Again!
Thanks to Laura Anderson, the nutritionist at the
Chicken Soup Brigade, we will have one of their yummy recipes in the newsletter
each month. Enjoy!
Fried Rice with Tofu and Peanuts (Makes four
servings)
|
Ingredients |
Amount |
|
brown rice, cooked |
4 cups |
|
green peas |
2 cups |
|
tofu, cubed |
1 pound |
|
carrots, diced |
¾ cup |
|
green onions, sliced |
½ cup |
|
garlic, minced |
1 tsp. |
|
ginger, ground |
1 tsp. |
|
sesame oil |
1 tbs. |
|
vegetable oil |
2 tbs. |
|
soy sauce |
2 tbs. or add to taste |
|
peanuts, chopped |
4 oz. |
Directions: Sauté garlic in oil over
medium heat for one minute. Add ginger, carrots, rice; then cook, stirring for
five minutes. Add water to moisten, if necessary. Stir in green peas and tofu,
then heat through. Season with soy sauce and top with chopped peanuts. |